Monday, September 5, 2011

What a Differnce a Week Makes!

It has been a crazy, roller-coaster ride of a week! I am so glad to have it behind me and to be where I am now. It took a lot of talking to friends and family, a lot of tears, and a lot of prayers, but I am in so much of a better place. I guess there is a period of time when something tragic happens to you, that you have to figure out how not to be the victim and how to take control of the situation. How to break out of that vicious cycle of  "why me" and break into a strength and power that you might not have even known was there. To reach this point I needed knowledge and a plan. Knowledge about what it was exactly that was happening and "a plan of attack", so to speak, for how to handle it. Now that we have both everything will be ok.

I have included a lot of links in this post as I hope you do your own reading on a few of these things. :)

We are going to do things differently this time and hopefully better. The Genetically Targeted and Fractionated (GTF more commonly called IPT) chemo protocol that we used last time worked very well. (Envita calls it GTF because they take it a step farther and make sure the specific agents that they use will work you your specific type of cancer.) It got rid of the 5 inch long mass in my chest. But it came at a high price. Not only financially, but it was very hard on my body. I lost a lot of weight and simple things like eating and using the bathroom became huge successes if they went well, because they usually didn't. And of course having the toxic chemotherapy agents running through your veins is not only harmful to the cancer, but also to the rest of your body. Hair loss is only the most visible symptom. I always said (when I was in remission) that if it happened again I would do it different. Find a different way.

Sadly, as we know all to well, all alternative cancer treatments are frowned on by insurance companies and they will not help. But we believe we have found a protocol that will work for me. First of all I am eating according to the book "The Stupid Diet". Basically cancer likes inflammation and sugars, so I am avoiding as best as I can the things that fall into those categories. I want to drain the beast of it's power! Also taking a butt-load of vitamins and eating organic food to minimize the toxins that I am taking in so my body can focus all it's energy on the task at hand.

Then, as soon as we can, we will hit it through specialized IV treatments. Two different agents will be used.
1. Poly MVA
2. Polymannan Extract (PME)
It just takes a quick google search on both of these to learn more about them.

I will go in to my Dr in Scottsdale (Envita) 4x's a week for about a month. We are hoping that by that time we will see (and I will feel) a massive change in our situation. That the therapies are working. Then we will decide whether to raise more money, or if it would be a good time to switch to an oral form of Poly MVA. We hope that will be the case. This was the case for a young man with lymphoma that they recently helped with a mass much larger than mine on his neck. His family couldn't afford the GTF chemo so they opted for this treatment as it is very promising, has less side effects and costs a quarter of that GTF costs. His mass disappeared and he had his whole life ahead of him.

That's the plan for me too! Thank you for following me on my journey and for helping us out in anyway that you can. Deciding how to go about treatment is a personal and difficult decision. One side of the medical field pushes hard twords chemotherapy and radiation while the other side (all kinds of doctors, including oncologists) advise to stay as far away from it as you possibly can. I have dear friends and family members that are alive today because of chemotherapy, radiation, and the things offered through conventional cancer treatment. I don't want to come off as putting it down in any way. It is just not right for me. I know that with more surety than I can even describe. The decision should be left to each person and family dealing with cancer and one side shouldn't ever look down on the other because everyone is only doing what they think will be best and have the best end results.

I love my life! I love everyday. Lately I've tried to make it a point to "take in" something new everyday. A beauty or a blessing that I may overlook by rushing through life. Just to stop and notice things around you can make you feel closer to our Creator. That is a feeling I treasure. Now to take on today!

1 comment:

  1. I'm glad you have a plan and feel good about your plan. And I am glad that I can share your plan with my family and friends who have been asking me about your plan. Go get em girl! Let me know if you need anything I can help with way over here in Mesa.