Thursday, August 30, 2012

A Necessary Evil: Steroids...A Necessary Blessing: Friends

I woke up at 2:45 am. *sigh*

I do take comfort that I am in  my own bed...but I am jealous of Jess as he rubs it in my face by  sleeping so peacefully next to me. Show off. 

I am on Decadron (Dexamethasone). It has been a blessing. It has taken the swelling down in my brain enough to where my vision is near normal now and I don't really have headaches, but as with any medication, the side effects are no fun. I've had to be on this drug before when the last tumor was crushing my spine, so I now it all too well.

The one bugging right now is that it isn't letting me sleep (obviously). Plus it upsets my stomach. 

Want more info? It's fun stuff. Lol. Decadron (Dexamethasone Oral) 

What I mostly struggle with is insomnia. upset stomach (yet increased appetite...figure that one out), edema (swelling of my body), weight gain, and over all body soreness...oh...and I almost forgot my favorite one...facial hair. Ugh!!!

So if I get a little chubby and am sporting a few sprouts in my chin, hold back the chuckles.   OK?

Of course they gave me Restoril (Temazepam) to sleep, but I'm trying to avoid another medication if at all possible. I'm kind of stubborn like that.

To add to the fun of tonight too, my back is sore. Hurts to do any bending in my lumbar spine because of the Spinal Tap (Lumbar Puncture)  procedure I had done yesterday. I took some Tylenol, but that's as much as I'll take. Having to get off of prescription pain meds was extremely hard last time, and I don't want to feel those awful withdrawals again! 

The procedure itself went well and my Dr was very skilled. (An answer to my prayer right there!) I did cry...of course...but I didn't have to be alone. 

While I had great friends (and husband) helping me with the necessities of running my one was lined up to be with ME! (Again I'm exposing how needy I am.) Then a hospital angel flew to my side. 

Yay Brandi! Bless her sweet heart for driving the hour just to come and hold my hand...then "girl talk" for an hour afterwards to keep my mind off of the crappy stuff. 

We met as neighbors, I recruited her mad skills as my hairdresser, we've moved twice and never lost contact. She's helped me through al the emotional trauma that a woman goes through when she finds herself having to be bald. Her husband even raffled off his Harley Davidson Motorcycle to help us pay some medical bills...who does that??? 

Amazing people and a blessing in our lives.

Now she is an up-and-coming tattoo model and has an idea to use her "pretty girl" influence, and my "pity girl" pull (I call it that, she doesn't) to try and help us with more of our mega costs. Her and her husband really have hearts of gold.

So my heart was happy.

Shortly after she left, Jess came by to to take me home! The hour ride in the back of the car (laying down) wasn't even bad. I think the joy of going home just took over. I wasn't disappointed at all once I was reunited with the kids. They were so glad to see me! Especially Lily...she would't leave my side. *special*

So that's where I'm at. 

This has taken me forever to type because I am laying on my side, typing with one hand. Necessary to keep my back straight. Now it's almost time to get up and Jess left for work an hour ago...oh well. Once I get the kids off to school I can rest.

Wish me luck on m first day trying to be a mom!


  1. Oh my word! What an awesome friend! You truly are blessed to have someone like her in your life. I wish I lived closer so I could stop by and help you get your kids off to school. I hope you get some rest.

  2. Have Dr put you on Sonata or Trazadone 50mg for sleep. Both are way safer and are way less habit forming AND they are quicker acting drugs so they dont stay in your system as long. Ive tried the temazapam and it doesnt seem to do much at all but make me groggy...ugh and i can stand feeling groggy!!! Plus Temazapam poses a risk of sleep walking and making you forgetfull or brain foggy and after having kids I get that allll on my own and i REALLY dont need more of that. I have not tried Sonata, but Ive read up on it. I have been on trazadone for 4 years and i swear you will never get better sleep, and you wake up feeling happy!:)If you have any more questions e-mail me any time!