Boy have I neglected this blog lately. I guess I go through phases of wanting a certain amount of privacy. Writing is sometimes a very vulnerable thing to do. So, oddly enough, it is when I feel vulnerable and scared, that I need to write. It is like writing keeps my mind clear. When I write it reminds me of how I feel...and that I really do have faith! Those things are sometimes easy to forget when fear is running things. So I'm going to try and be better to blog even when things are going good. I'm sure I'll get much joy out of sharing my life as it gets more "normal".
Thank you for being patient with me!
Ok...I didn't even look at my last blog to know where I left off. Basically things were gradually progressing, I was getting better and just a few months ago I got a clean PET scan confirming that I was in remission. I've been regularly attending physical and occupational therapy and making great strides. I even have started skipping!
I was gaining my life back as a mom and wife...and even a pilates instructor! I even have plans on the table to "assist" in a Zumba class to get me dancing again!!! And just so you know, so far those things are still happening. Just hit a speed bump I guess.
Ok...so here's how it all started.
One week ago I had a strange thing happen while I was doing some grocery shopping. Suddenly the isles and people were blurry and I had to stop walking. Not sure what was happening, I immediately stopped walking. I experienced large blind spots were I couldn't see whole carts until I was looking straight at them. Basically I hd no peripheral vision. While it was scary, I still had to finish what I was doing, then pick up the kids from school. I waited...waited...then it gradually improved. So much so that I saw normally, and had no headache! I could do all the driving that I needed to do and was fine until Jess got home from work. Then it happened again. An hour or so passed and the symptoms left.
We did lots and lots of reading and what kept coming up was "ocular migraine". We'll take it!
So 3 days pass and then it happens again, except my vision started to look cross-eyed this time. This was Last Thursday. Again with a mild headache. I rested. Again it went away.
But we did MORE research. Sudden loss of vision is always concerning, but "ocular migraine" kept popping up...so we waited...and hoped and prayed.
Friday. Started off fine. I got the kids to school without a problem, but come time to pick them up was a different story. Bad headache and double vision. I saw fine out of one eye at a time, but not both. Cross your eyes slightly, and that's how I saw. Out of necessity I picked them up. I figured out that if I put my hand over my nose and up to my eyebrow I could get rid of the double vision. I must have looked silly driving. :) But I wouldn't have put my kids lives in danger, so know that I was safe.
The rest of the day I spent resting. And all of Saturday too. Having Jess with me was so nice. But by the end of they day we knew we were going to the emergency room. We planned it for Sunday morning while the kids were in church and I would go to a nearby hospital. We hoped to be back home in time.
The ER was empty so we got taken care of right away. Blood tests and a scan. Blood good! Scan not. From that first scan they were saying "cancer" already.
Tears flowed. Many tisses were sacrificed. Jess and I know nothing about cancer in the brain. It sounds so scary. Still does.
By know we knew that I had to be hospitalized and we had decided to go where we had a good experience before, and where my background was known. Scottsdale Shea.
Jess brought the kids to the hospital to say bye. That was hard. Especially for Lily. She was fighting tears the whole time. Seeing her mommy put into an ambulance...again. Last time she saw that I didn't come back for over a month. I held it together for her. At least until we were out of sight. Then I could hold back my sobs no more.
So now I am admitted. I saw a Dr (that was very optimistic) and I've been having all kinds of tests done. My prayer is that they can treat it with radiation and not have to do surgery. Oddly enough no mention of chemo yet.
So that's where we are at. Emotionally, I am a mess. I am scared and I just want to go home. Distraction is a great thing right now. I get to see my kids in a few hours, and that will be awesome!